Starting Easter Sunday, Jilli spent 3 days in photo therapy because she was jaundice. That was tough! I had not really put her down at that point. We had to go from constant cuddling to only holding her 45 minutes at a time and ONLY to feed her. We made it through and are so thankful that is over. I have a whole new appreciation for NICU & PICU parents.
For the most part, Jilli eats and sleeps well. She has horrible intestinal pain due to severe gas. (my diet is quite bland, so we can't really explain this.) At times she is in excruciating pain - it kills me because I can't do anything for her. We just rock and cuddle our way through. The 3 am episodes when I can barely keep my head up are the worst. We will see the doctor tomorrow for her 2 week weigh in, hopefully she will have some insight.